Frivolous Indecision

Current Mood: Cool

We got the information from our attorney yesterday. It looks like our court date for guardianship is April 2. We were given the name of the court appointed attorney that has to come out and interview Payne. They will be contacting us in the next week. We were also told that a sheriff will be coming out to serve Payne with “guardianship papers”. That ought to be interesting. haha! The attorney will determine if Payne is capable of testifying in court. I am glad we started this process back in December. The court date is 2 weeks after his 18th birthday and that was the soonest we could get in. This will be a challenge not that it will be hard to prove that we need complete custody of him but just having to do something like this is never really fun, is it? lol It really has been a long road with him. While I wouldn’t take anything back with him, I can’t deny that it has been hard. As much as we have missed out on so many “normal” things what we get in return of him being in our lives MORE than makes up for it. It is hard to explain and no one really understands it unless they have a child like this. It changes your entire being….as a parent, a person. It changes your perspective on life, emotionally, intellectually, physically, in every aspect. I do wish things were easier on him. I see the struggle in his eyes daily. I hear it in his voice. I know he has so much that he wishes he could share but he can’t. What touches me are the people in our lives that truly make an effort to get to know him. Who aren’t afraid of him. Or who take the initiative to have a relationship with him on his level. We have had people who have taken the time and effort out of their own schedule just to be around him, knowing that he may not respond. We have had people willing to change things just so that he can be included. We have had friends willing to have gatherings at our house just so we can all be included. We have had friends who know and understand his limitations and have been very considerate of our limitations because of him. Coming out to Kansas City has given us a network of support that has no comparison and I am grateful for that every day of my life. When friends give so much of themselves in order to be a part of our lives and help us they truly become family in so many ways. No matter what has happened with him in the past year especially, medically, physically, developmentally, I have the best level of support and understanding from those close to me I have been able to talk to about the struggles, the trials, the concerns, the joys, the funny, the sad, and the frustrating. As I start this new phase of our lives that include guardianship, medical issues, disability, social security, medicaid, transition into adult programs among many other things I am so glad I have people who care, who make the effort to know what is going on with this amazing boy young man, whom I can lean on as well as laugh with; I know that I am so fortunate to have such generous and compassionate people in my life here where I feel so much as home.

Now if we can get him to leave the house I will claim success on my parenting! LOL

Here are a few of his favorite songs that he likes us to sing to him…. *This one he listens to ALL the time….I have it on his Ipod for him.*

He will sing this with the music…I love it!

This is one from when he was very little….He LOVES this song!

These songs really tell you the kind of person he is.